Featured Research

from universities, journals, and other organizations

IBD patients have few credible online resources on treatment options

Date:
March 24, 2010
Source:
American Gastroenterological Association
Summary:
Few websites provide high-quality patient information about treatment options for Crohn's disease and ulcerative colitis.

Few websites provide high-quality patient information about treatment options for Crohn's disease and ulcerative colitis, according to a new study in Clinical Gastroenterology and Hepatology, the official journal of the American Gastroenterological Association (AGA) Institute.

"There is a need for high-quality, accredited Web sites that provide information on treatment options for patients, and these sites need to be updated regularly," said Sander J.O. Veldhuyzen van Zanten, MD, of the University of Alberta and lead author of the study. "Medical information provided through the Internet is unreliable and at times inaccurate. We need to ensure that criteria are used to determine which sites provide the best and most up-to-date evidence-based information."

As with any disease, patients want to be informed about their illness and frequently want more information than is received during a typical visit with their physician. Patients often specifically want to know details about treatments such as information regarding indications, effectiveness and side effects. Studies have shown that patients with inflammatory bowel disease (IBD) have a high information need and many believe that they do not know enough about their disease. More and more patients are seeking additional information through other sources such as the World Wide Web.

Researchers used Google™ to identify 50 Web sites on three occasions. The following attributes of each Web site were evaluated:

  • A data quality score (DQS) was used to assess the quality of information on each Web site regarding medical treatments for IBD.
  • A global quality score (GQS) was used to rate the overall quality of the sites.
  • A drug category quality score (DCQS) was used to rate each drug category within an individual Web site.
  • DISCERN, a validated tool of 15 questions, was used to evaluate the quality of health information available to patients regarding treatment options.
  • The readability and integrity of each Web site was evaluated, as well as how current the information on each site was.

The median DQS range was 22 (range: 0-76), median GQS was two (five-point scale) and median reading grade level was 12 (range 6.9-13.7). A total of eight Web sites achieved a GQS of four or five. The DQS was highly associated with the GQS and the DISCERN instrument. Information on funding source (54 percent) and date of last update (56 percent) were often lacking.

In the current era of evidence-based medicine, it is important that Web sites provide information that is accurate and in line with the accepted evidence-based practices of medicine. Explicit information on how statements about treatment, effectiveness, indications and contraindications of treatments are derived need to be available.

"We suggest that Web sites provide explicit information on indications, efficacy and frequency of side effects of medications. They should also provide explicit and clear information on who developed, maintains and owns the site, dates of publication, and sources of funding for both the Web sites and the clinical data being discussed," added Dr. van Zanten.

About IBD

Crohn's disease and ulcerative colitis are chronic, often life-long inflammatory bowel conditions. Ulcerative colitis is a disease of the colon in which inflammation of the lining of the large intestine occurs. Crohn's disease causes inflammation of the lining and wall of the large and/or small intestine. When inflamed, the lining of the intestinal wall is red and swollen, becomes ulcerated, and bleeds.


Story Source:

The above story is based on materials provided by American Gastroenterological Association. Note: Materials may be edited for content and length.


Cite This Page:

American Gastroenterological Association. "IBD patients have few credible online resources on treatment options." ScienceDaily. ScienceDaily, 24 March 2010. <www.sciencedaily.com/releases/2010/03/100324155354.htm>.
American Gastroenterological Association. (2010, March 24). IBD patients have few credible online resources on treatment options. ScienceDaily. Retrieved April 20, 2014 from www.sciencedaily.com/releases/2010/03/100324155354.htm
American Gastroenterological Association. "IBD patients have few credible online resources on treatment options." ScienceDaily. www.sciencedaily.com/releases/2010/03/100324155354.htm (accessed April 20, 2014).

Share This



More Health & Medicine News

Sunday, April 20, 2014

Featured Research

from universities, journals, and other organizations


Featured Videos

from AP, Reuters, AFP, and other news services

Nine-Month-Old Baby Can't Open His Mouth

Nine-Month-Old Baby Can't Open His Mouth

Newsy (Apr. 19, 2014) Nine-month-old Wyatt Scott was born with a rare disorder called congenital trismus, which prevents him from opening his mouth. Video provided by Newsy
Powered by NewsLook.com
'Holy Grail' Of Weight Loss? New Find Could Be It

'Holy Grail' Of Weight Loss? New Find Could Be It

Newsy (Apr. 18, 2014) In a potential breakthrough for future obesity treatments, scientists have used MRI scans to pinpoint brown fat in a living adult for the first time. Video provided by Newsy
Powered by NewsLook.com
Little Progress Made In Fighting Food Poisoning, CDC Says

Little Progress Made In Fighting Food Poisoning, CDC Says

Newsy (Apr. 18, 2014) A new report shows rates of two foodborne infections increased in the U.S. in recent years, while salmonella actually dropped 9 percent. Video provided by Newsy
Powered by NewsLook.com
Scientists Create Stem Cells From Adult Skin Cells

Scientists Create Stem Cells From Adult Skin Cells

Newsy (Apr. 17, 2014) The breakthrough could mean a cure for some serious diseases and even the possibility of human cloning, but it's all still a way off. Video provided by Newsy
Powered by NewsLook.com

Search ScienceDaily

Number of stories in archives: 140,361

Find with keyword(s):
Enter a keyword or phrase to search ScienceDaily for related topics and research stories.

Save/Print:
Share:

Breaking News:
from the past week

In Other News

... from NewsDaily.com

Science News

Health News

Environment News

Technology News



Save/Print:
Share:

Free Subscriptions


Get the latest science news with ScienceDaily's free email newsletters, updated daily and weekly. Or view hourly updated newsfeeds in your RSS reader:

Get Social & Mobile


Keep up to date with the latest news from ScienceDaily via social networks and mobile apps:

Have Feedback?


Tell us what you think of ScienceDaily -- we welcome both positive and negative comments. Have any problems using the site? Questions?
Mobile: iPhone Android Web
Follow: Facebook Twitter Google+
Subscribe: RSS Feeds Email Newsletters
Latest Headlines Health & Medicine Mind & Brain Space & Time Matter & Energy Computers & Math Plants & Animals Earth & Climate Fossils & Ruins