Featured Research

from universities, journals, and other organizations

Lupus patients: The doctor, nurse and social worker are here to see you

Date:
November 9, 2010
Source:
Hospital for Special Surgery
Summary:
The benefits of collaborative, multidisciplinary care of patients with complex autoimmune diseases like lupus and multiple sclerosis are just beginning to be appreciated by physicians. New research demonstrates the advantages of such a specialized disease center dedicated to comprehensive lupus care.

The benefits of collaborative, multidisciplinary care of patients with complex autoimmune diseases like lupus and multiple sclerosis are just beginning to be appreciated by physicians. Hospital for Special Surgery in New York are presenting evidence of the advantages of such a specialized disease center dedicated to comprehensive lupus care at the 74th Annual Meeting of the American College of Rheumatology in Atlanta.

Related Articles


"Every time a patient comes in for an appointment, I am able to greet them personally, to find out what is going on in their lives and what may be bothering them that day," said Pretima Persad, M.P.H., manager of the Mary Kirkland Center for Lupus Care. "We provide patients with care that is personalized to their particular situation, such as pregnancy or psychological concerns. We want them to know that their care team is really listening to them."

In addition to check-ins with Ms. Persad before every appointment, patients meet with a nurse and a social worker at Hospital for Special Surgery. "Patients feel that they are being provided with an umbrella of care," according to Dr. Doruk Erkan, co-director of the Mary Kirkland Center. "In this centralized environment, the patient is the number one focus. We are treating the patient as a whole, not just the disease."

The physicians, nurses, social workers and research coordinators at the Mary Kirkland Center for Lupus Care at Hospital for Special Surgery know that treating patients with lupus requires the coordinated efforts of a number of health care professionals. "Each patient-care team member brings individual expertise but is aware that treatment of this chronic disease requires concurrent battle on multiple fronts," said Dr. Kyriakos Kirou, co-director of the center. "They are trained to expect the unexpected and to support patients who may be confused and frightened."

Lupus causes the immune system to attack the body's own cells, resulting in inflammation and tissue damage. The disease is unpredictable and periods of illness follow periods of remission with barely a warning that skin, heart, joints, lungs or other parts of the body are being harmed. Nine out of ten patients with lupus are female and the disease can affect virtually any organ system in the body, including the nervous, circulatory and lymphatic systems.

The Mary Kirkland Center is an ideal place for research coordinators to recruit patients for clinical studies, Ms. Persad noted. She stressed that, while participating in research studies that place a focus on the disease can be daunting, the patients know and trust the staff well enough that they are comfortable getting involved.

The Mary Kirkland Center also instituted a formalized educational experience for professionals. Physicians attend lectures focused on lupus and related conditions so that they are able to understand "lupus from the perspective of other specialties," according to Ms. Persad. Rheumatologists specializing in lupus care play an integral part in these lectures and in lupus case conferences.

One program that has benefitted from the multidisciplinary nature of the Center is the Cardiovascular Disease Prevention Counseling Program, available free-of-charge to all patients. Since lupus patients are at increased risk for cardiovascular events like heart attack and stroke, it is important to consistently monitor cardiovascular risk factors such as blood pressure. "Focusing on and addressing cardiovascular health and wellness makes a huge, positive impact in patients with lupus," said Dr. Erkan. "We're optimistic from our past successes that we can help push lupus symptoms into the background -- literally and figuratively -- when there are more pressing things on the minds of our patients."

Other authors of the study from Hospital for Special Surgery include Suzy Kim, LCSW; Monica Richey, MSN, ANP-BC/GNP, and Jane E. Salmon, M.D.


Story Source:

The above story is based on materials provided by Hospital for Special Surgery. Note: Materials may be edited for content and length.


Cite This Page:

Hospital for Special Surgery. "Lupus patients: The doctor, nurse and social worker are here to see you." ScienceDaily. ScienceDaily, 9 November 2010. <www.sciencedaily.com/releases/2010/11/101109133147.htm>.
Hospital for Special Surgery. (2010, November 9). Lupus patients: The doctor, nurse and social worker are here to see you. ScienceDaily. Retrieved December 19, 2014 from www.sciencedaily.com/releases/2010/11/101109133147.htm
Hospital for Special Surgery. "Lupus patients: The doctor, nurse and social worker are here to see you." ScienceDaily. www.sciencedaily.com/releases/2010/11/101109133147.htm (accessed December 19, 2014).

Share This


More From ScienceDaily



More Health & Medicine News

Friday, December 19, 2014

Featured Research

from universities, journals, and other organizations


Featured Videos

from AP, Reuters, AFP, and other news services

The Best Tips to Curb Holiday Carbs

The Best Tips to Curb Holiday Carbs

Buzz60 (Dec. 19, 2014) It's hard to resist those delicious but fattening carbs we all crave during the winter months, but there are some ways to stay satisfied without consuming the extra calories. Vanessa Freeman (@VanessaFreeTV) has the details. Video provided by Buzz60
Powered by NewsLook.com
Sierra Leone Bikers Spread the Message to Fight Ebola

Sierra Leone Bikers Spread the Message to Fight Ebola

AFP (Dec. 19, 2014) More than 100 motorcyclists hit the road to spread awareness messages about Ebola. Nearly 7,000 people have now died from the virus, almost all of them in west Africa, according to the World Health Organization. Video provided by AFP
Powered by NewsLook.com
Researchers Test Colombian Village With High Alzheimer's Rates

Researchers Test Colombian Village With High Alzheimer's Rates

AFP (Dec. 19, 2014) In Yarumal, a village in N. Colombia, Alzheimer's has ravaged a disproportionately large number of families. A genetic "curse" that may pave the way for research on how to treat the disease that claims a new victim every four seconds. Duration: 02:42 Video provided by AFP
Powered by NewsLook.com
Kids Die While Under Protective Services

Kids Die While Under Protective Services

AP (Dec. 18, 2014) As part of a six-month investigation of child maltreatment deaths, the AP found that hundreds of deaths from horrific abuse and neglect could have been prevented. AP's Haven Daley reports. (Dec. 18) Video provided by AP
Powered by NewsLook.com

Search ScienceDaily

Number of stories in archives: 140,361

Find with keyword(s):
Enter a keyword or phrase to search ScienceDaily for related topics and research stories.

Save/Print:
Share:

Breaking News:

Strange & Offbeat Stories


Health & Medicine

Mind & Brain

Living & Well

In Other News

... from NewsDaily.com

Science News

Health News

Environment News

Technology News



Save/Print:
Share:

Free Subscriptions


Get the latest science news with ScienceDaily's free email newsletters, updated daily and weekly. Or view hourly updated newsfeeds in your RSS reader:

Get Social & Mobile


Keep up to date with the latest news from ScienceDaily via social networks and mobile apps:

Have Feedback?


Tell us what you think of ScienceDaily -- we welcome both positive and negative comments. Have any problems using the site? Questions?
Mobile: iPhone Android Web
Follow: Facebook Twitter Google+
Subscribe: RSS Feeds Email Newsletters
Latest Headlines Health & Medicine Mind & Brain Space & Time Matter & Energy Computers & Math Plants & Animals Earth & Climate Fossils & Ruins