Featured Research

from universities, journals, and other organizations

Changing the common rule to increase minority voices in research

Date:
October 21, 2013
Source:
Georgia State University
Summary:
Researchers recommend changing the U.S. federal regulations that govern oversight of human subjects research ("the Common Rule") to address continued underrepresentation of minorities in research studies.

An article to be published in the American Journal of Public Health recommends changing the federal regulations that govern oversight of human subjects research ("the Common Rule") to address continued underrepresentation of minorities in research studies.

Co-written by Bill Rencher (M.P.H. '12), health access program director of the consumer advocacy nonprofit Georgia Watch, and Leslie Wolf, Georgia State University professor of law, the article, "Redressing Past Wrongs: Changing the Common Rule to Increase Minority Voices in Research," is part of a special issue on the Ethics of Human Subjects Research in Minority Populations.

The article responds to the underrepresentation of African-Americans and other minorities in research, an important public health problem because numerous diseases and health conditions, regardless of income, age, or gender, disproportionately affect these populations. Without adequate representation of minority populations in research, these health disparities will likely persist.

There are many reasons for the underrepresentation of minorities in research. Many point to the Tuskegee study in which the U.S. government followed hundreds of poor, rural African-American men with untreated syphilis for 40 years as a cause of mistrust in research.

However, "the history of medical and research abuses dates to slavery," Rencher says. "African-Americans may be disinclined to participate because of long-standing suspicion with the medical establishment." They also may lack access to care, which means they are not asked to participate in the first place, and see few minority physicians or researchers.

"We recommend treating minorities as a vulnerable population for regulatory purposes, as is done for children, prisoners and pregnant women," Wolf says, "to focus the attention of those overseeing the studies. We continue to have problematic studies involving minority populations. Our hope is creating special regulatory provisions will focus attention in ways that eliminate these problematic studies."

The article also suggests greater community consultation and increasing minority representation on Institutional Review Boards, organizations charged with reviewing research studies, to better provide greater minority input into the research oversight system.

Rencher and Wolf hope more attention to the concerns of communities affected will facilitate research that can find solutions to the health inequities that persist in the United States.

"The changes we're recommending alone are not going to solve the problem. There need to be other structural changes, such as more minority researchers and physicians. But we hope our article gets the conversation started," Rencher says.

The collaboration with Wolf on the article resulted from taking her human subject research course, which Rencher, an attorney, took as an elective for his master of public heath degree through Georgia State's new School of Public Health.


Story Source:

The above story is based on materials provided by Georgia State University. Note: Materials may be edited for content and length.


Journal Reference:

  1. William C. Rencher, Leslie E. Wolf. Redressing Past Wrongs: Changing the Common Rule to Increase Minority Voices in Research. American Journal of Public Health, 2013; e1 DOI: 10.2105/AJPH.2013.301356

Cite This Page:

Georgia State University. "Changing the common rule to increase minority voices in research." ScienceDaily. ScienceDaily, 21 October 2013. <www.sciencedaily.com/releases/2013/10/131021104244.htm>.
Georgia State University. (2013, October 21). Changing the common rule to increase minority voices in research. ScienceDaily. Retrieved July 22, 2014 from www.sciencedaily.com/releases/2013/10/131021104244.htm
Georgia State University. "Changing the common rule to increase minority voices in research." ScienceDaily. www.sciencedaily.com/releases/2013/10/131021104244.htm (accessed July 22, 2014).

Share This




More Science & Society News

Tuesday, July 22, 2014

Featured Research

from universities, journals, and other organizations


Featured Videos

from AP, Reuters, AFP, and other news services

What Self-Made Women Need to Know Financially Before Getting Hitched

What Self-Made Women Need to Know Financially Before Getting Hitched

TheStreet (July 21, 2014) Halle Berry was recently ordered to pay her ex-boyfriend Gabriel Aubry $16,000 a month in child support by a California judge for their daughter Nahla. As women make strides in the workforce, they are increasingly left holding the bag when relationships end regardless of marital status. 'What Monied Women Need to Know Before Getting Married or Cohabitating' discusses information such as debt incurred during the marriage is both spouse's responsibility at divorce, whether after ten years of marriage spouses are entitled to half of everything and why property acquired within the marriage is fair game without a pre-nup. Video provided by TheStreet
Powered by NewsLook.com
$23.6 Billion Awarded To Widow In Smoking Lawsuit

$23.6 Billion Awarded To Widow In Smoking Lawsuit

Newsy (July 20, 2014) Cynthia Robinson claims R.J. Reynolds Tobacco Company hid the health and addiction risks of its products, leading to the death of her husband in 1996. Video provided by Newsy
Powered by NewsLook.com
Clock Ticks Down on Internet Speed Debate

Clock Ticks Down on Internet Speed Debate

Reuters - US Online Video (July 18, 2014) The FCC received more than 800,000 comments on whether and how internet speeds should be regulated, even crashing its system. Lily Jamali reports. Video provided by Reuters
Powered by NewsLook.com
Raw: Wildfire Tears Through Washington

Raw: Wildfire Tears Through Washington

AP (July 18, 2014) A large wildfire continued to gain steam through north-central Washington Friday. The blaze is already responsible for the destruction of at least 100 homes. (July 18) Video provided by AP
Powered by NewsLook.com

Search ScienceDaily

Number of stories in archives: 140,361

Find with keyword(s):
Enter a keyword or phrase to search ScienceDaily for related topics and research stories.

Save/Print:
Share:

Breaking News:
from the past week

In Other News

... from NewsDaily.com

Science News

Health News

Environment News

Technology News



Save/Print:
Share:

Free Subscriptions


Get the latest science news with ScienceDaily's free email newsletters, updated daily and weekly. Or view hourly updated newsfeeds in your RSS reader:

Get Social & Mobile


Keep up to date with the latest news from ScienceDaily via social networks and mobile apps:

Have Feedback?


Tell us what you think of ScienceDaily -- we welcome both positive and negative comments. Have any problems using the site? Questions?
Mobile: iPhone Android Web
Follow: Facebook Twitter Google+
Subscribe: RSS Feeds Email Newsletters
Latest Headlines Health & Medicine Mind & Brain Space & Time Matter & Energy Computers & Math Plants & Animals Earth & Climate Fossils & Ruins