Featured Research

from universities, journals, and other organizations

Children With Sickle Cell Disease Receiving Inadequate Care, Study Finds

Date:
December 1, 2008
Source:
Wiley-Blackwell
Summary:
A new study finds that youth populations with sickle cell disease are receiving inadequate health care, and thus may fail to benefit from scientific advances. The study finds that the patients, mostly African-Americans, often lack insurance or access to specialized sickle cell centers for treatment.

A new study finds that youth populations with sickle cell disease (SCD) are receiving inadequate healthcare, and thus may fail to benefit from scientific advances. The study, published in Pediatric Blood & Cancer, finds that the patients, mostly African Americans, often lack insurance or access to specialized sickle cell centers for treatment.

SCD, a blood disease characterized by abnormally shaped red blood cells, affects close to 100,000 persons in the United States alone. The disease is a chronic medical condition, which causes frequent episodes of pain and may lead to serious infections as well as stroke.

According to one of the study authors, Jean Raphael, of the Baylor College of Medicine, significant percentages of children with SCD fail to see a specialist even once per year and that only 10 percent of cases are followed by hematologists. Additionally, the number of hematologists and other health care providers dedicated to care of these patients may be insufficient to provide adequate care.

"This topic has significant relevance to healthcare quality and delivery to children with chronic conditions," says Raphael. "Rising healthcare costs in the U.S. due to chronic diseases demand more from the healthcare system for better long-term survival."

An accompanying editorial by Dr. Jane Hankins of St. Jude Children's Research Hospital notes that in a country where advances in care and research for SCD are praised as among the best in the world, children with this condition continue to receive inadequate health care and consequently fail to fully benefit from substantial progress in scientific research.

"As with any chronic pediatric condition, management of SCD requires more frequent and more substantial use of medical resources, but managed care organizations and pediatricians do not receive compensation rates reflective of the high cost of caring for these children," says Hankins.

"The combination of a disease that combines progressive organ damage, poverty, racial inequalities, disease stigmatization, uninsured or unstably insured children and poorly compensated health care professionals results in a precarious situation. It is important to draw attention to problems in health care delivery as this information may help spur changes that will result in increased effort and resources."


Story Source:

The above story is based on materials provided by Wiley-Blackwell. Note: Materials may be edited for content and length.


Cite This Page:

Wiley-Blackwell. "Children With Sickle Cell Disease Receiving Inadequate Care, Study Finds." ScienceDaily. ScienceDaily, 1 December 2008. <www.sciencedaily.com/releases/2008/11/081124165255.htm>.
Wiley-Blackwell. (2008, December 1). Children With Sickle Cell Disease Receiving Inadequate Care, Study Finds. ScienceDaily. Retrieved April 23, 2014 from www.sciencedaily.com/releases/2008/11/081124165255.htm
Wiley-Blackwell. "Children With Sickle Cell Disease Receiving Inadequate Care, Study Finds." ScienceDaily. www.sciencedaily.com/releases/2008/11/081124165255.htm (accessed April 23, 2014).

Share This



More Health & Medicine News

Wednesday, April 23, 2014

Featured Research

from universities, journals, and other organizations


Featured Videos

from AP, Reuters, AFP, and other news services

Big Pharma Braces for M&A Wave

Big Pharma Braces for M&A Wave

Reuters - Business Video Online (Apr. 22, 2014) Big pharma on the move as Novartis boss, Joe Jimenez, tells Reuters about plans to transform his company via an asset exchange with GSK, and Astra Zeneca shares surge on speculation that Pfizer is looking for a takeover. Joanna Partridge reports. Video provided by Reuters
Powered by NewsLook.com
Study Says Most Crime Not Linked To Mental Illness

Study Says Most Crime Not Linked To Mental Illness

Newsy (Apr. 22, 2014) A new study finds most crimes committed by people with mental illness are not caused by symptoms of their illness or disorder. Video provided by Newsy
Powered by NewsLook.com
Hagel Gets Preview of New High-Tech Projects

Hagel Gets Preview of New High-Tech Projects

AP (Apr. 22, 2014) Defense Secretary Chuck Hagel is given hands-on demonstrations Tuesday of some of the newest research from DARPA _ the military's Defense Advanced Research Projects Agency program. (April 22) Video provided by AP
Powered by NewsLook.com
How Smaller Plates And Cutlery Could Make You Feel Fuller

How Smaller Plates And Cutlery Could Make You Feel Fuller

Newsy (Apr. 22, 2014) NBC's "Today" conducted an experiment to see if changing the size of plates and utensils affects the amount individuals eat. Video provided by Newsy
Powered by NewsLook.com

Search ScienceDaily

Number of stories in archives: 140,361

Find with keyword(s):
Enter a keyword or phrase to search ScienceDaily for related topics and research stories.

Save/Print:
Share:

Breaking News:
from the past week

In Other News

... from NewsDaily.com

Science News

    Health News

    Environment News

    Technology News



    Save/Print:
    Share:

    Free Subscriptions


    Get the latest science news with ScienceDaily's free email newsletters, updated daily and weekly. Or view hourly updated newsfeeds in your RSS reader:

    Get Social & Mobile


    Keep up to date with the latest news from ScienceDaily via social networks and mobile apps:

    Have Feedback?


    Tell us what you think of ScienceDaily -- we welcome both positive and negative comments. Have any problems using the site? Questions?
    Mobile: iPhone Android Web
    Follow: Facebook Twitter Google+
    Subscribe: RSS Feeds Email Newsletters
    Latest Headlines Health & Medicine Mind & Brain Space & Time Matter & Energy Computers & Math Plants & Animals Earth & Climate Fossils & Ruins