Featured Research

from universities, journals, and other organizations

Why physicians are reluctant to share patient data: Fine line between protecting privacy and public health

Date:
July 7, 2011
Source:
Children's Hospital of Eastern Ontario Research Institute
Summary:
The uncertainty surrounding a pandemic of a new strain of influenza has not changed the privacy concerns of physicians about disclosing patient data. It is important to address these concerns to ensure reliable reporting during future outbreaks.

Family doctors are reluctant to disclose identifiable patient information, even in the context of an influenza pandemic, mostly in an effort to protect patient privacy. A recently published study by Dr. Khaled El Emam the Canada Research Chair in Electronic Health Information at the University of Ottawa and the Children's Hospital of Eastern Ontario Research Institute recently found that during the peak of the H1N1 pandemic in 2009, there was still reluctance to report detailed patient information for public health purposes.

Related Articles


These results are important today, so we can learn from that experience and prepare for the inevitable next pandemic.

"There is a perceived tradeoff between the public good and individual privacy. If we sway too much on the public good side, then all people's health data would be made available without conditions," explained Dr. El Emam. "If we sway too much on the individual privacy side then no health data would be shared without consent, but then this would potentially increase public health risks. Physicians are important gatekeepers of patient information, so we need to better understand the conditions under which they are willing to provide patient data so that everyone wins; we do not need to make these tradeoffs."

Five focus groups with 37 family doctors from across Canada provided insights into the reasons they were reluctant to share patient data. First, the physicians were concerned about the privacy of their patients, and did not know if the data uses would be limited to dealing with the pandemic. Second, they also did not perceive that they would get direct benefits back to them and their patients from giving data to public health. Finally, there were concerns about how the data could be used to evaluate their performance. Using these results, Dr. El Emam and his co-authors constructed a model to offer guidance on how public health can work with family practices to encourage data sharing for disease surveillance purposes.

"The study results provide a clear roadmap for public health authorities to get access to more community practice information," noted Dr. El Emam. "Patient data needs to be properly anonymized, and health care practitioners must be provided with timely and actionable feedback. It should not be taken for granted that the medical community is willing to give data unconditionally."


Story Source:

The above story is based on materials provided by Children's Hospital of Eastern Ontario Research Institute. Note: Materials may be edited for content and length.


Cite This Page:

Children's Hospital of Eastern Ontario Research Institute. "Why physicians are reluctant to share patient data: Fine line between protecting privacy and public health." ScienceDaily. ScienceDaily, 7 July 2011. <www.sciencedaily.com/releases/2011/07/110707122000.htm>.
Children's Hospital of Eastern Ontario Research Institute. (2011, July 7). Why physicians are reluctant to share patient data: Fine line between protecting privacy and public health. ScienceDaily. Retrieved February 26, 2015 from www.sciencedaily.com/releases/2011/07/110707122000.htm
Children's Hospital of Eastern Ontario Research Institute. "Why physicians are reluctant to share patient data: Fine line between protecting privacy and public health." ScienceDaily. www.sciencedaily.com/releases/2011/07/110707122000.htm (accessed February 26, 2015).

Share This


More From ScienceDaily



More Health & Medicine News

Thursday, February 26, 2015

Featured Research

from universities, journals, and other organizations


Featured Videos

from AP, Reuters, AFP, and other news services

Sleeping Too Much Or Too Little Might Increase Stroke Risk

Sleeping Too Much Or Too Little Might Increase Stroke Risk

Newsy (Feb. 26, 2015) People who sleep more than eight hours per night are 45 percent more likely to have a stroke, according to a University of Cambridge study. Video provided by Newsy
Powered by NewsLook.com
London Show Dissects History of Forensic Science

London Show Dissects History of Forensic Science

AFP (Feb. 25, 2015) Forensic science, which has fascinated generations with its unravelling of gruesome crime mysteries, is being put under the microscope in an exhibition of real criminal investigations in London. Duration: 00:53 Video provided by AFP
Powered by NewsLook.com
Michigan Couple Celebrates Identical Triplets

Michigan Couple Celebrates Identical Triplets

AP (Feb. 25, 2015) A suburban Detroit couple who have two older children are adjusting to life after becoming parents to identical triplets _ a multiple birth a doctor calls rare. (Feb. 25) Video provided by AP
Powered by NewsLook.com
Mayor Says District of Columbia to Go Ahead With Pot Legalization

Mayor Says District of Columbia to Go Ahead With Pot Legalization

Reuters - News Video Online (Feb. 25, 2015) Washington&apos;s mayor says the District of Columbia will move forward with marijuana legalization, despite pushback from Congress. Rough Cut (no reporter narration). Video provided by Reuters
Powered by NewsLook.com

Search ScienceDaily

Number of stories in archives: 140,361

Find with keyword(s):
Enter a keyword or phrase to search ScienceDaily for related topics and research stories.

Save/Print:
Share:

Breaking News:

Strange & Offbeat Stories


Health & Medicine

Mind & Brain

Living & Well

In Other News

... from NewsDaily.com

Science News

Health News

Environment News

Technology News



Save/Print:
Share:

Free Subscriptions


Get the latest science news with ScienceDaily's free email newsletters, updated daily and weekly. Or view hourly updated newsfeeds in your RSS reader:

Get Social & Mobile


Keep up to date with the latest news from ScienceDaily via social networks and mobile apps:

Have Feedback?


Tell us what you think of ScienceDaily -- we welcome both positive and negative comments. Have any problems using the site? Questions?
Mobile: iPhone Android Web
Follow: Facebook Twitter Google+
Subscribe: RSS Feeds Email Newsletters
Latest Headlines Health & Medicine Mind & Brain Space & Time Matter & Energy Computers & Math Plants & Animals Earth & Climate Fossils & Ruins