Featured Research

from universities, journals, and other organizations

After pregnancy loss, Internet forums help women understand they are not alone

Date:
October 20, 2011
Source:
University of Michigan Health System
Summary:
An anonymous survey of more than 1,000 women on pregnancy loss message boards opens a new window into who is using the forums and why.

Nearly one in six pregnancies end in miscarriage or stillbirth, but parents' losses are frequently minimized or not acknowledged by friends, family or the community.

"Women who have not gone through a stillbirth don't want to hear about my birth, or what my daughter looked like, or anything about my experience," said one woman, responding in a University of Michigan Health System-led study that explored how Internet communities and message boards increasingly provide a place for women to share feelings about these life-altering experiences.

The anonymous survey of more than 1,000 women on 18 message boards opens a new window into who is using the forums and why. The findings will be published in Women's Health Issues.

The researchers were surprised to find that only half of the women surveyed were in their first year of loss after a pregnancy. Many were still coping with the emotional impacts five, 10 and even 20 years later.

"To my family and most friends, the twins have been gone for nearly a year and are entirely a subject for the past," another woman wrote.

A second unexpected finding was that only 2 percent of survey respondents were African American, despite nearly 60 percent of African Americans having internet access and despite black women having twice the risk of stillbirth as white women.

"This is the largest study to look at who uses Internet message boards after a pregnancy loss and it demonstrates a significant disparity between the women who experience loss and those who responded to the survey," says lead study author Katherine J. Gold, M.D., M.S.W., M.S., assistant professor of family medicine at the U-M Medical School. "This suggests an important gap in support for African American parents that should be explored further."

By far, the most common reason women gave for participating in the message boards was that it helped them to feel that their experience wasn't unique.

One woman explained that the most important aspect of the forums was knowing "that I am not the only one this has happened to and that I am not alone in this horrible nightmare." Another common theme was that the online environments provided a safe and validating space for the women to express themselves. Others appreciated the ease and convenience of the Internet and their ability to spend more time composing their thoughts than they would be able to in a face-to-face conversation.

Most participants agreed that boards should have a moderator or facilitator, and that health care professionals should participate. Of the 908 women who answered the question, 82 percent said they had learned new medical information from one of the forums.

"The fact that so many women learned new medical information from the message boards shows what an important resource they can be in this regard," says study senior author Christie Palladino, M.D., M.Sc., an obstetrician/gynecologist with Georgia Health Sciences University's Education Discovery Institute.

Gold and her colleagues are currently pursuing similar research with bereaved parents who attend in-person support groups and plan to compare and contrast the results.


Story Source:

The above story is based on materials provided by University of Michigan Health System. Note: Materials may be edited for content and length.


Journal Reference:

  1. Katherine J. Gold, Martha E. Boggs, Emeline Mugisha, Christie Lancaster Palladino. Internet Message Boards for Pregnancy Loss: Who’s On-Line and Why? Women's Health Issues, 2011; DOI: 10.1016/j.whi.2011.07.006

Cite This Page:

University of Michigan Health System. "After pregnancy loss, Internet forums help women understand they are not alone." ScienceDaily. ScienceDaily, 20 October 2011. <www.sciencedaily.com/releases/2011/10/111020024834.htm>.
University of Michigan Health System. (2011, October 20). After pregnancy loss, Internet forums help women understand they are not alone. ScienceDaily. Retrieved April 20, 2014 from www.sciencedaily.com/releases/2011/10/111020024834.htm
University of Michigan Health System. "After pregnancy loss, Internet forums help women understand they are not alone." ScienceDaily. www.sciencedaily.com/releases/2011/10/111020024834.htm (accessed April 20, 2014).

Share This



More Health & Medicine News

Sunday, April 20, 2014

Featured Research

from universities, journals, and other organizations


Featured Videos

from AP, Reuters, AFP, and other news services

Nine-Month-Old Baby Can't Open His Mouth

Nine-Month-Old Baby Can't Open His Mouth

Newsy (Apr. 19, 2014) Nine-month-old Wyatt Scott was born with a rare disorder called congenital trismus, which prevents him from opening his mouth. Video provided by Newsy
Powered by NewsLook.com
'Holy Grail' Of Weight Loss? New Find Could Be It

'Holy Grail' Of Weight Loss? New Find Could Be It

Newsy (Apr. 18, 2014) In a potential breakthrough for future obesity treatments, scientists have used MRI scans to pinpoint brown fat in a living adult for the first time. Video provided by Newsy
Powered by NewsLook.com
Little Progress Made In Fighting Food Poisoning, CDC Says

Little Progress Made In Fighting Food Poisoning, CDC Says

Newsy (Apr. 18, 2014) A new report shows rates of two foodborne infections increased in the U.S. in recent years, while salmonella actually dropped 9 percent. Video provided by Newsy
Powered by NewsLook.com
Scientists Create Stem Cells From Adult Skin Cells

Scientists Create Stem Cells From Adult Skin Cells

Newsy (Apr. 17, 2014) The breakthrough could mean a cure for some serious diseases and even the possibility of human cloning, but it's all still a way off. Video provided by Newsy
Powered by NewsLook.com

Search ScienceDaily

Number of stories in archives: 140,361

Find with keyword(s):
Enter a keyword or phrase to search ScienceDaily for related topics and research stories.

Save/Print:
Share:

Breaking News:
from the past week

In Other News

... from NewsDaily.com

Science News

Health News

Environment News

Technology News



Save/Print:
Share:

Free Subscriptions


Get the latest science news with ScienceDaily's free email newsletters, updated daily and weekly. Or view hourly updated newsfeeds in your RSS reader:

Get Social & Mobile


Keep up to date with the latest news from ScienceDaily via social networks and mobile apps:

Have Feedback?


Tell us what you think of ScienceDaily -- we welcome both positive and negative comments. Have any problems using the site? Questions?
Mobile: iPhone Android Web
Follow: Facebook Twitter Google+
Subscribe: RSS Feeds Email Newsletters
Latest Headlines Health & Medicine Mind & Brain Space & Time Matter & Energy Computers & Math Plants & Animals Earth & Climate Fossils & Ruins