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Many ALS Patients Have High Quality Of Life, Studies Find

Date:
June 24, 2008
Source:
Deutsches Aerzteblatt International
Summary:
Patients with amyotrophic lateral sclerosis experience an astonishingly high quality of life. This disease leads to progressive muscular weakness and the clinical course is always fatal. In spite of the continuously increasing loss of control, new studies have shown that many ALS patients are satisfied with their lives.
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FULL STORY

Patients with amyotrophic lateral sclerosis (ALS) experience an astonishingly high quality of life. This disease leads to progressive muscular weakness and the clinical course is always fatal. In spite of the continuously increasing loss of control, studies performed by Birbaumer et al. (Tübingen) and Ludolph et al. (Ulm) and reported in the current edition of Deutsches Ärzteblatt International have shown that many ALS patients are satisfied with their lives.

The authors showed that the quality of life of ALS patients does not depend on the severity of their physical restrictions. In contrast, it was found that patients who have to be given artificial respiration are more satisfied than patients for whom this is not necessary. Although an outside observer would have expected ALS patients to be depressed, as the disease is so serious, this was only the case for 10% of patients. This means that the proportion of depressive disorders is only slightly greater than in the overall population.

In view of the public discussion on euthanasia and assisted suicide, the authors think it essential that there should be a scientific investigation of the quality of life, as seen by the patient. The present studies show that the quality of life of patients with a fatal degenerative disease does not necessarily have to differ from that of healthy subjects.

In an accompanying editorial, Professor Hans Förstl points out the significance of these studies for the discussion of measures to shorten life. These could no longer be simply justified by saying that the patient had to be freed from his suffering. Förstl commented that the suffering is seen by the observer and not felt by the patient.


Story Source:

The above post is reprinted from materials provided by Deutsches Aerzteblatt International. Note: Materials may be edited for content and length.


Journal Reference:

  1. Dorothée Lulé, Sonja Häcker, Albert Ludolph, Niels Birbaumer, Andrea Kübler. Depression and Quality of Life in Patients With Amyotrophic Lateral Sclerosis. Deutsches Ärzteblatt, 2008; 105(23): 397-403 [link]

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Deutsches Aerzteblatt International. "Many ALS Patients Have High Quality Of Life, Studies Find." ScienceDaily. ScienceDaily, 24 June 2008. <www.sciencedaily.com/releases/2008/06/080620120002.htm>.
Deutsches Aerzteblatt International. (2008, June 24). Many ALS Patients Have High Quality Of Life, Studies Find. ScienceDaily. Retrieved September 5, 2015 from www.sciencedaily.com/releases/2008/06/080620120002.htm
Deutsches Aerzteblatt International. "Many ALS Patients Have High Quality Of Life, Studies Find." ScienceDaily. www.sciencedaily.com/releases/2008/06/080620120002.htm (accessed September 5, 2015).

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