Featured Research

from universities, journals, and other organizations

Who Owns Your Medical Tests Results and Personal Health Data?

Date:
April 18, 2008
Source:
Inderscience Publishers
Summary:
Who owns your medical tests results and your personal health data? Such a vexing question cuts to the core of personal liberty and freedom of information. Now, researchers have introduced the notion of ownership of medical information and present a basic research model for the adoption of personal health records.

Who owns your medical tests results and your personal health data? Such a vexing question cuts to the core of personal liberty and freedom of information. Now, researchers writing in the International Journal of Healthcare Technology and Management have introduced the notion of ownership of medical information and present a basic research model for the adoption of personal health records.

Personal health records (PHRs) have been developed in the US as part of the Institute of Medicine's goal of improving healthcare quality and making it more patient-centered as well as through patient pressure to have greater control of their health data. The PHR is also integral to the US National Health Information Network (NHIN), which will give all Americans access to their electronic health records by 2014. However, little research has been published on how PHRs compare with other types of medical records or how privacy concerns are to be addressed.

Melinda Whetstone and Ebrahim Randeree of the College of Information, at Florida State University, Tallahassee explain that employers, insurance companies, healthcare providers and independent entities have increasing access to PHRs. However, whether the PHR, and other types of electronic records (Electronic Medical Record (EMR) and Electronic Health Record (EHR), have been adopted and implemented successfully remains unclear.

One of the aims of adopting the PHR is to reduce the chances of medical errors caused by overuse, under use or misuse of a patient's medical data. The Institute of Medicine estimated that there are almost 100,000 deaths each year caused by such preventable mistakes.

Nevertheless, from the patient perspective, the adoption of PHRs must provide benefits that outweigh any trust and privacy issues, the researchers say. Fundamentally, a PHR will be an electronic, lifelong resource containing an individual's health information, which they and authorized healthcare workers can access at any time, to allow them to make appropriate health decisions. The Tallahassee team suggests that individuals will own and manage the information in the PHR.

Data in a PHR would include a patient's immunizations, allergies and adverse drug reactions, medications, herbal remedies taken, past and present illnesses and hospitalizations, surgeries and other procedures, laboratory test results, and family history.

The PHR might also contain living wills and advance directives, organ donor authorization, recent physical examination data, healthcare workers' opinions, other test results, eye and dental records, permission and consent forms, and even lifestyle information, such as details of smoking, drinking, drug use, exercise and diet.

The benefits of adopting a secure, online PHR system include allowing access to a comprehensive personal health history that can be used by healthcare workers. Additionally, it could give patients the means to become their own health advocate, provide benchmarks and prompts for maintenance.

"The ability to create a PHR is available. The desire and need for patients to utilize this technology is real. The intangible question of 'Will they come?' has yet to be answered."


Story Source:

The above story is based on materials provided by Inderscience Publishers. Note: Materials may be edited for content and length.


Cite This Page:

Inderscience Publishers. "Who Owns Your Medical Tests Results and Personal Health Data?." ScienceDaily. ScienceDaily, 18 April 2008. <www.sciencedaily.com/releases/2008/04/080416094953.htm>.
Inderscience Publishers. (2008, April 18). Who Owns Your Medical Tests Results and Personal Health Data?. ScienceDaily. Retrieved October 22, 2014 from www.sciencedaily.com/releases/2008/04/080416094953.htm
Inderscience Publishers. "Who Owns Your Medical Tests Results and Personal Health Data?." ScienceDaily. www.sciencedaily.com/releases/2008/04/080416094953.htm (accessed October 22, 2014).

Share This



More Health & Medicine News

Wednesday, October 22, 2014

Featured Research

from universities, journals, and other organizations


Featured Videos

from AP, Reuters, AFP, and other news services

CDC Revamps Ebola Guidelines After Criticism

CDC Revamps Ebola Guidelines After Criticism

Newsy (Oct. 21, 2014) The Centers for Disease Control and Prevention have issued new protocols for healthcare workers interacting with Ebola patients. Video provided by Newsy
Powered by NewsLook.com
WHO: Ebola Vaccine Trials to Start a in January

WHO: Ebola Vaccine Trials to Start a in January

AP (Oct. 21, 2014) Tens of thousands of doses of experimental Ebola vaccines could be available for "real-world" testing in West Africa as soon as January as long as they are deemed safe in soon to start trials, the World Health Organization said Tuesday. (Oct. 21) Video provided by AP
Powered by NewsLook.com
First-Of-Its-Kind Treatment Gives Man Ability To Walk Again

First-Of-Its-Kind Treatment Gives Man Ability To Walk Again

Newsy (Oct. 21, 2014) A medical team has for the first time given a man the ability to walk again after transplanting cells from his brain onto his severed spinal cord. Video provided by Newsy
Powered by NewsLook.com
CDC Issues New Ebola Guidelines for Health Workers

CDC Issues New Ebola Guidelines for Health Workers

Reuters - US Online Video (Oct. 21, 2014) The U.S. Centers for Disease Control and Prevention has set up new guidelines for health workers taking care of patients infected with Ebola. Linda So reports. Video provided by Reuters
Powered by NewsLook.com

Search ScienceDaily

Number of stories in archives: 140,361

Find with keyword(s):
Enter a keyword or phrase to search ScienceDaily for related topics and research stories.

Save/Print:
Share:

Breaking News:

Strange & Offbeat Stories


Health & Medicine

Mind & Brain

Living & Well

In Other News

... from NewsDaily.com

Science News

Health News

Environment News

Technology News



Save/Print:
Share:

Free Subscriptions


Get the latest science news with ScienceDaily's free email newsletters, updated daily and weekly. Or view hourly updated newsfeeds in your RSS reader:

Get Social & Mobile


Keep up to date with the latest news from ScienceDaily via social networks and mobile apps:

Have Feedback?


Tell us what you think of ScienceDaily -- we welcome both positive and negative comments. Have any problems using the site? Questions?
Mobile: iPhone Android Web
Follow: Facebook Twitter Google+
Subscribe: RSS Feeds Email Newsletters
Latest Headlines Health & Medicine Mind & Brain Space & Time Matter & Energy Computers & Math Plants & Animals Earth & Climate Fossils & Ruins