Validation of patient reported outcomes obtained in the home infusion setting in the management of patients with neuromuscular disease
- Date:
- October 30, 2014
- Source:
- American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM)
- Summary:
- New information about how to monitor medications given at home has been provided by the results of new research. Many autoimmune neuromuscular disorders, such as Myasthenia Gravis, myositis, and CIDP, require the use of medications to suppress the immune system, such as IVIg. However, these medications must be given through infusions and are expensive when taken on a regular basis.
- Share:
A study presented at the annual meeting of the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) provides some new information about how to monitor medications given at home.
Many autoimmune neuromuscular disorders, such as Myasthenia Gravis, myositis, and CIDP, require the use of medications to suppress the immune system, such as IVIg. However, these medications must be given through infusions and are expensive when taken on a regular basis.
In a pilot study, the researchers found that patient reported outcome measures given by the infusion nurse matched the impression given by the physician when the patient went in for check ups. Indeed, the observations made by the patients were highly reliable and did not vary.
This research suggests that we may be able to use patient report given at home, either on the telephone or electronically to monitor medication use. This may allow a reduction in medication use, particularly of expensive medications with side effects, such as IVIg.
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Materials provided by American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM). Note: Content may be edited for style and length.
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